When everyone was discouraging me from making different choices for my life, Jesse was always there to encourage me to live my own life and make my own mistakes. Knowing he was just a text or call away gave me so much strength and courage to confront the world.
This experience has negatively impacted every aspect of my life. My physical and mental health have suffered. I felt (and still feel) traumatized and furious that this happened to me.
I was diagnosed with severe Crohn’s at eight years old. Getting through each day was such a struggle but over time I learned how to better prepare myself for being out in the world. I had to plan ahead for any possibility every time I left the house. Eventually that turned into carrying a giant purse with literally everything but the bathroom sink. Here is a list of the basics I made sure to never leave home without.
It was an incredibly lonely time in a life full of loneliness but it’s also when things really started to turn around for me.
A lot of assumptions are hurled at only children. People just assume you’re a spoiled brat who has been handed everything you could ever want in life. They just assume things were calm and peaceful in your household because it was just you and your parents must have been so attentive to your every whim. They assume you’re socially awkward and don’t know how to make friends or interact with people. They assume you’re still spoiled as an adult and have always had a great support system. That was not my experience whatsoever.
Joint pain and fatigue are common when you have IBD. It can be so hard to motivate ourselves to exercise when we are in pain and already exhausted but exercise is so important for pain relief and improving our health.
When someone tells you, “You’re just lucky,” and dismisses all your hard work and dedication.
Living with an autoimmune disease.
Being diagnosed with Crohn’s as a child made life very difficult. Feeling like I had no one to talk to made that struggle so much harder than it needed to be.