I was diagnosed with severe Crohn’s at eight years old. Getting through each day was such a struggle but over time I learned how to better prepare myself for being out in the world. I had to plan ahead for any possibility every time I left the house. Eventually that turned into carrying a giant purse with literally everything but the bathroom sink. Here is a list of the basics I made sure to never leave home without.
It was an incredibly lonely time in a life full of loneliness but it’s also when things really started to turn around for me.
Dr. van der Kolk stated, “The bodies of child-abuse victims are tense and defensive until they find a way to relax and feel safe.” When I started trying to take better care of myself, I decided to get a massage. The first time, and several after to be honest, were not very pleasant or relaxing. I would often still feel just as tense or even more so when it was over. The masseuse would keep saying, “You can relax now,” and I would be so confused because I thought I was relaxed.
The more I called bullshit on negative thought patterns, the more my health improved. The more I started consciously deciding what to think, the more my life improved.
When you have IBD, you often feel like you’re in a battle for the bathroom. Here are some tactics to conquer the bathroom battle.
10% Happier: How I tamed the Voice in My Head, Reduced Stress Without Losing My Edge, and Found Self-Help That Actually Works – A True Story by Dan Harris
When someone tells you, “You’re just lucky,” and dismisses all your hard work and dedication.
Living with an autoimmune disease.
My first flight as a child with Crohn’s Disease